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Non-profit Organizations 

Down syndrome Pregnancy
Website: www.downsyndromepregnancy.com

Upside of Down
Website: www.upsideofdown.org

National Organizations

National Down Syndrome Society
Website: www.ndss.org

National Down Syndrome Congress
Website: www.ndsccenter.org

Regional Organizations

United States of America

ALABAMA

North Alabama Down Syndrome Society
Athens, AL
Phone: 256-771-1547
Email: enskat1405@hotmail.com

Down Syndrome Alabama/Parent Advocates Down Syndrome
Birmingham, AL
Phone: 205-988-0810
Email: downsyndromealabama@gmail.com
Website: www.downsyndromealabama.org

Down Syndrome Society of Mobile County
Mobile, AL
Phone: 251-634-1351
Email: lalapedrn@aol.com
Website: www.dssmc.com

ARIZONA

Sharing Down Syndrome Arizona! Inc
Gilbert, AZ
Phone: 480-926-6500
Email: gina@sharingds.org
Website: www.sharingds.org

Down Syndrome Network AZ
Phoenix, AZ
Phone: 480-759-9150
Email: info@dsnetworkaz.org
Website: www.dsnetworkaz.org

ARKANSAS

Down Syndrome Connection of Northwest Arkansas
Siloam Springs, AR
Phone: 479-549-1084
Email: kathy@dscnwa.org
Website: www.dscnwa.org

CALIFORNIA

Down Syndrome Association of Riverside County West
Corona, CA
Phone: 951-314-3937
Email: lindseyferrell@sbcglobal.net
Website: www.dsarcw.org

Down Syndrome Association of Los Angeles
Glendale, CA
Phone: 818-242-7871
Email: info@dsala.org
Website: www.dsala.org

Down Syndrome Association of Orange County
Costa Mesa, CA
Phone: 714-540-5794
Email: info@dsaoc.org
Website: www.dsaoc.org

Parents Helping Parents Silicon Valley Down Syndrome Network
Santa Clara, CA
Phone: 408-727-5775
Email: info@php.com

The Arc Solano /Solano Parents United for Down Syndrome
Vallejo, CA
Phone: 707-552-2935
Email: arcgforcier@email.com
Website: www.thearcsolano.org

Down Syndrome Association of San Diego
San Diego, CA
Phone: 858-272-1415
Email: lsmith06@san.rr.com
Website: www.dsasdonline.org

Down Syndrome Foundation of Orange County
Irvine, CA
Phone: 949-757-1177
Email: info@dsfoc.org
Website: www.dsfoc.org

Down Syndrome Special Needs Network
Santa Maria, CA
Phone: 805-937-9458
Email: hofflouise@aol.com

Fresno Area Down Syndrome Society
Fresno, CA
Phone: 559-228-0411
Email: execdir@fadss.net
Website: www.fadss.net

Down Syndrome Information Alliance
Sacramento, CA
Phone: 916-658-1686
Email: info@downsyndromeinfo.org
Website: www.downsyndromeinfo.org

Down Syndrome Connection of the Bay Area
Danville, CA
Phone: 925-362-8660
Email: down_syndrome@sbcglobal.net
Website: www.dsconnection.org

Down Syndrome Action
San Diego, CA
Phone: 619-694-4615
Email: raylene.dickinson@dsaction.com
Website: www.dsaction.com

Sonoma County Down Syndrome Support
Santa Rosa, CA
Phone: 707-537-8001

Down Syndrome Association of Hemet
Hemet, CA
adelecox731@msn.com

COLORADO

Mile High Down Syndrome Association Inc.
Denver, CO
Phone: 303-797-1699
Email: info@mhdsa.org
Website: www.mhdsa.org

Colorado Springs Down Syndrome Association
Colorado Springs, CO
Phone: 719-633-1133
Email: info@csdsa.org
Website: www.csdsa.org

CONNECTICUT

Connecticut Down Syndrome Congress
Hartford, CT
Phone: 888-486-8537
Email: manager@ctdownsyndrome.org
Website: www.ctdownsyndrome.org

DELAWARE

Down Syndrome Association of Delaware
Middletown, DE
Phone: 302-995-1004
Website: www.dsadelaware.com

FLORIDA

Down Syndrome Association of Central Florida
Orlando, FL
Phone: 407-540-1121
Email: avanbergen@dsacf.org
Website: www.dsacf.org

Down Syndrome Association of Jacksonville
Jacksonville, FL
Phone: 904-353-6300
Email: dsaj@bellsouth.net
Website: www.dsaj.org

Manasota BUDS
Bradenton, FL
Phone: 941-907-0499
Email: info@manasotabuds.org
Website: www.manasotabuds.org

Gold Coast Down Syndrome Organization
Boca Raton, FL
Phone: 561-912-1231
Email: gcdso@bellsouth.net
Website: www.Goldcoastdownsyndrome.org

FRIENDS Support
Brandon, FL
Phone: 813-654-6693

Fun Coast Down Syndrome Association
Palm Coast, FL
Phone: 386-447-8034
Email: funcoastdown@bellsouth.net
Website: www.funcoastdownsyndrome.com

GEORGIA

Down Syndrome Association of Atlanta
Atlanta, GA
Phone: 404-320-3233
Email: contactus@atlantadsaa.org
Website: www.atlantadsaa.org

HAWAII

Hawaii Down Syndrome Congress
Honolulu, HI
Phone: 808-949-1999
Email: hawaiidownsyndrome@hawaii.rr.com

IDAHO

Treasure Valley Down Syndrome Association
Meridian, ID
Phone: 208-378-9912
Email: president@idahodownsyndrome.org
Website: www.idahodownsyndrome.org

ILLINOIS

Livingston Area Down Syndrome Society
Chatsworth, IL
Phone: 815-589-2202
Email: info@ladss.org
Website: www.ladss.org

Heart of Illinois Down Syndrome Association
Morton, IL
Phone: 309-712-4852
Email: info@hoidsa.org
Website: www.hoidsa.org

Gigi’s Playhouse
Hoffman Estates, IL
Phone: 847-885-7529
Email: gianni4567@aol.com
Website: www.gigisplayhouse.com

NADS
Wilmette, IL
Phone: 630-325-9112
Email: info@nads.org
Website: www.nads.org

Down Syndrome Network
Champaign, IL
Phone: 217-351-4163
Email: info@champaigndsn.org
Website: www.champaigndsn.org

Central IL Down Syndrome Organization
Normal, IL
Phone: 309-452-3264
Website: www.cidso.org

INDIANA

Down Syndrome Association of Central Indiana
Carmel, IN
Phone: 317-574-9757
Email: MKaye62801@aol.com

Dads Appreciating Down Syndrome
Indianapolis, IN
Phone: 317-523-5888
Website: www.dadsappreciatingdownsyndrome.net

Down Syndrome Support Asso. of South Indiana
Clarksville, IN
Phone: 812-948-5182
Email: dssasi@dssasi.com
Website: www.dssasi.org

Down Syndrome Indiana
Indianapolis, IN
Phone: 317-925-7617
Email: info@dsindiana.org
Website: www.dsindiana.org

Elkhart Co. Down Syndrome Support Group
Goshen, IN
Phone: 574-534-3931
Email: ecdssg@mac.com
Website: www.ecdssg.org

SMILE on Down Syndrome
Newburgh, IN
Phone: 812-925-6839
Email: nina@smileondownsyndrome.org
Website: www.smileondownsyndrome.org

Down Syndrome Family Connection
Bloomington, IN
Phone: 812-720-9603
Email: info@downsyndromefamilyconnection.org
Website: www.downsyndromefamilyconnection.org

Down Syndrome Family Support and Advocacy Group (Northern Indiana)
Granger, IN
Phone: 574-234-0590
Email: info@www.michianadownsyndrome.org
Website: www.michianadownsyndrome.org

IOWA

Hawkeye Area Down Syndrome Association
Ainsworth, IA
Email: mccarthy@hadsa.org
Website: www.hadsa.org

Northwest Iowa Down Syndrome Society
Spencer, IA
Phone: 712-580-6671

KANSAS

Down Syndrome Guild of Greater Kansas City
Shawnee Mission, KS
Phone: 913-384-4848
Email: info@kcdsg.org
Website: www.kcdsg.org

KENTUCKY

Green River Area Down Syndrome Association
Owensboro, KY
Phone: 270-771-4945
Email: info@gradsa.org
Website: www.gradsa.org

Down Syndrome of Louisville, Inc.
Louisville, KY
Phone: 502-495-5088
Email: dianam@downsyndromeoflouisville.org
Website: www.downsyndromeoflouisville.org

LOUISIANA

Up with Down’s
Shreveport, LA
Phone: 318-797-8575
Email: upwithdowns@hotmail.com
Website: www.upwithdowns.com

Down Syndrome Association of Acadiana
Lafayette, LA
Phone: 337-234-3109
Email: dsaa@dsaa.info
Website: www.dsaa.info

Down Syndrome Awareness Group
Baton Rouge, LA
Phone: 225-664-0375
Email: phroberts@cox.net

Down Syndrome Association of Greater New Orleans
Destrehan, LA
Phone: 504-251-8953
Email: kscallan@dsagno.org
Website: www.dsagno.org

MARYLAND

Anne Arundel County Down Syndrome Connection
Arnold, MD
Phone: 410-757-8339
Email: flornce397@comcast.net

Chesapeake Down Syndrome Parent Group, Inc.
Baltimore, MD
Phone: 410-321-5434
Email: info@cdspg.org
Website: www.cdspg.org

F.R.I.E.N.D.S
Middletown, MD
Phone: 301-371-7047
Email: friendsoffredco@gmail.com

MASSACHUSETTS

Massachusetts Down Syndrome Congress
Melrose, MA
Phone: 800-664-6372
Email: mdsc@mdsc.org
Website: www.mdsc.org

Berkshire County ARC Down Syndrome Family Group
Pittsfield, MA
Phone: 413-499-4241 265
Email: mtiffany@bcarc.org

Down Syndrome Resource Group of Western MA
Springfield, MA
Phone: 800-536-2910, 413-794-8342
Email: info@dssupport.org
Website: www.dssupport.org

MICHIGAN

Down Syndrome Association of West Michigan
Grand Rapids, MI
Phone: 616-956-3488
Email: dsawm@iserv.net
Website: www.dsawm.org

Families Exploring Down Syndrome
Sterling Heights, MI
Phone: 586-997-7607
Email: fedsyndrome@aol.com
Website: www.familiesexploringdownsyndrome.org

Down Syndrome Guild of Southeast Michigan
Royal Oak, MI
Phone: 248-827-9135
Email: info@dsgsemi.org
Website: www.dsgsemi.org

St. Clair County Down Syndrome Support Group
St. Clair, MI
Phone: 810-367-2045
Email: kellydinardo@comcast.net

MINNESOTA

Down Syndrome Association of Minnesota
St. Paul, MN
Phone: 651-603-0720
Email: kathleen@dsamn.org
Website: www.dsamn.org

MISSOURI

Down Syndrome Group of the Ozarks
Springfield, MO
Phone: 417-885-9905
Email: DLneidigh@att.net
Website: www.ozarksdsg.org

Down Syndrome Association of Greater St. Louis, Inc.
St. Louis, MO
Phone: 314-961-2504
Email: linda@dsagsl.org
Website: www.dsagsl.org

NEBRASKA

Down Syndrome Association for Families
Lincoln, NE
Phone: 402-421-1399
Email: deb@dsafnebraska.org
Website: www.dsafnebraska.org

Omaha Down Syndrome Parents Network
Omaha, NE
Phone: 402-991-1800
Email: info@opdsn.org
Website: www.odspn.org

NEVADA

Down Syndrome Organization of S. Nevada
Las Vegas, NV
Phone: 702-648-1990
Email: ceo@dsosn.org
Website: www.dsosn.org

Down Syndrome Network of Northern Nevada
Reno, NV
Phone: 775-544-8811
Email: colettemckenzie@sbcglobal.net

NEW HAMPSHIRE

Northern New England Down Syndrome Congress
Concord, NH
Phone: 603-622-6904
Email: maria@nnedsc.org
Website: www.nnedsc.org

NEW JERSEY

Down Syndrome Association of Central New Jersey
Ewing, NJ
Phone: 866-369-6796
Email: dsacnj@arcmercer.org
Website: www.dsacnj.org

Network 21
E. Brunswick, NJ
Phone: 732-634-3299
Email: geoffroyamy@gmail.com
Website: www.dsnetwork21.org

BUDS “Bringing Up Down Syndrome”
Cherry Hill, NJ
Phone: 856-354-0584
Email: threehens@aol.com

21 Down/ Down Syndrome Awareness Group
Northfield, NJ
Phone: 609-625-8141
Email: info@21down.org
Website: www.21down.org

KIIDS
Bellmawr, NJ
Phone: 856-435-2327
Email: julie@kiids.info
Website: www.kiids.info

NEW MEXICO

Rio Grande Down Syndrome Network
Rio Rancho, NM
Phone: 505-892-2551
Email: riograndedsn@aol.com

Southeastern New Mexico Down Syndrome Foundation
Roswell, NM
Phone: 575-622-1099
Email: tmccreary@plateautel.net

NEW YORK

Down Syndrome Information Network
Johnson City, NY
Phone: 607-729-3696
Email: jdimitriou@stny.rr.com

Down Syndrome Association of Central New York
Manlius, NY
Phone: 315-682-4289
Email: dsaofcny@aol.com

Down Syndrome Info Network of the Twin Tiers
Horseheads, NY
Phone: 607-734-6151
Email: carc@stny.rr.com

Down Syndrome Connection of Long Island
Huntington, NY
Phone: 631-427-4395
Email: info@dscli.org
Website: www.dscli.org

Flower City Down Syndrome Network
Webster, NY
Phone: 585-234-2345
Email: saccapez@rochester.rr.com
Website: www.fcdsn.com

Down Syndrome Parent Support Group of Genesee Cty
Oakfield, NY
Email: kay@downsyndromegenesee.org
Website: www.downsyndromegenesee.org

Trisomy 21 Foundation of Northern NY
Watertown, NY
Phone: 315-788-0869

Down Syndrome Association of the Hudson Valley
Hopewell Junction, NY
Phone: 845-226-5220
Email: fmarotta@frontiernet.net
Website: www.dsahv.org

Down Syndrome Aim High Resource Center, Inc.
Albany, NY
Phone: 518-438-1113
Email: dlang@dsahrc.org
Website: www.dsahrc.org

Down Syndrome Parent Group of Western New York
Kenmore, NY
Phone: 716-832-9334
Email: dspgwny@hotmail.com
Website: www.dspgwny.org

NORTH CAROLINA

Down Syndrome Association of Charlotte
Charlotte, NC
Phone: 704-536-2163
Email: president@dsacnc.org
Website: www.dsacnc.org

Triangle Down Syndrome Network
Raleigh, NC
Phone: 919-788-3646
Email: tdsnmail@triangledownsyndrome.org
Website: www.triangledownsyndrome.org

Piedmont Down Syndrome Support Network
Winston-Salem, NC
Email: pdssnemail@gmail.com
Website: www.pdssn.com

Down Syndrome Network of Greater Greensboro
Greensboro, NC
Phone: 336-832-6507
Email: nickelhodges@yahoo.com
Website: www.team-up.org

OHIO

Miami Valley Down Syndrome Association
Dayton, OH
Phone: 937-222-0744
Email: office@mvdsa.org
Website: www.mvdsa.org

Down Syndrome Association of Central Ohio
Columbus, OH
Phone: 614-475-6440
Email: dsaco@dsaco.net
Website: www.dsaco.net

The Down Syndrome Association of the Valley
Boardman, OH
Phone: 330-726-3728
Email: info@dsav.org
Website: www.dsav.org

Down Syndrome Association of Greater Cincinnati
Cincinnati, OH
Phone: 513-761-5400
Email: janet@dsagc.com
Website: www.dsagc.com

Upside of Downs/Greater Cleveland
Mentor, OH
Phone: 216-228-6246
Email: usodowns@aol.com
Website: www.theupsideofdowns.org

Down Syndrome Association of Greater Toledo
Sylvania, OH
Phone: 419-536-4321
Email: information@dsagt.org
Website: www.dsagt.org

OKLAHOMA

Down Syndrome Association of Central Oklahoma
Oklahoma City, OK
Phone: 405-330-5025
Email: mooreorless616@sbcglobal.net
Website: www.dsaco.org

Down Syndrome Association of Tulsa, Inc.
Tulsa, OK
Phone: 918-622-6906
Email: erin-adam@prodigy.net
Website: www.dsat.org

PENNSYLVANIA

Down Syndrome Association of Pittsburgh
Gibsonia, PA
Website: www.dsapgh.org
 
Delaware County Down Syndrome Interest Group
Springfield, PA
Phone: 610-544-4025
Email: DELCODSIG@yahoo.com

Montgomery County Down Syndrome Interest Group of PA
Sassamansville, PA
Phone: 610-754-1483
Email: rosehtownsend@yahoo.com
Website: www.mcdsig.org

Down Syndrome Group of Erie County
Erie, PA
Phone: 814-833-2143
Email: lupo12345@aol.com

Chester Co. Down Syndrome Interest Group
Exton, PA
Phone: 610-889-0291
Email: info@ccdsig.org
Website: www.ccdsig.org

RHODE ISLAND

Down Syndrome Society of Rhode Island
Cranston, RI
Phone: 401-463-5751
Email: coordinator@dssri.org
Website: www.dssri.org

SOUTH CAROLINA

Coastal Down Syndrome Group
North Myrtle Beach, SC
Phone: 843-280-5976
Email: gwilli5341@aol.com

The Grand Strand Down Syndrome Society
Pawleys Island, SC
Phone: 843-283-0890
Email: grandstranddss@hotmail.com
Website: www.gsdss.net
 
Family Connections
Columbia, SC
Phone: 822-578-8750
Email: info@familyconnectionsc.org

Down Syndrome Association of Lowcountry
Daniel Island, SC
Phone: 843-553-3725
Email: chad@danielislandmedia.net
Website: www.dsalowcountry.org

SOUTH DAKOTA

New Directions
Sioux Falls, SD
Phone: 605-582-7717
Email: matthieshome@alliancecom.net

TENNESSEE

Down Syndrome Awareness Group of East Tennessee
Knoxville, TN
Phone: 423-905-2968
Email: dsagtn@hotmail.com
Website: www.dsagtn.org

The Down Syndrome Association of the Mid-South
Memphis, TN
Phone: 901-547-7588
Email: director@dsamemphis.org
Website: www.dsamemphis.org

Chattanooga Down Syndrome Society
Signal Mountain, TN
Phone: 432-867-1629
Email: amyp98@comcast.net
Website: www.chattanoogadownsyndrome.org

Down Syndrome Association of Middle Tennessee
Nashville, TN
Phone: 615-386-9002
Email: dsamt@bellsouth.net
Website: www.dsamt.org

TEXAS

BUDS – Better Understanding of Down Syndrome
Lubbock, TX
Email: llowe@budsonline.net

Red River Valley Down Syndrome Society
Paris, TX
Phone: 903-783-1922
Email: info@rrvdss.org
Website: www.redriverdss.org

Down Syndrome Support Group of Bryan/College Station
Bryan, TX
Phone: 979-778-7010
Email: downsyndromeofbcs@yahoo.com
Website: www.downsyndromeofbcs.com

Down Syndrome Partnership of Tarrant Co.
Arlington, TX
Phone: 817-277-7064
Email: info@dsptc.org
Website: www.dsptc.org

East Texas Down Syndrome Group
Longview, TX
Phone: 903-757-3516
Email: clmack6@cablelynx.com
Website: www.etdsg.org

Down Syndrome Association of Central Texas
Austin, TX
Phone: 512-323-0808
Email: ltullos@dsact.com
Website: www.dsact.com

Down Syndrome Association of San Antonio
San Antonio, TX
Phone: 210-349-4372
Email: tblades@dsasa.org
Website: www.dsasa.org

Down Syndrome Guild of Dallas
Richardson, TX
Phone: 214-267-1374
Email: dsged@sbcglobal.net
Website: www.downsyndromedallas.org

Down By the Border
Brownsville, TX
Phone: 956-544-7727
Email: sergio@downbytheborder.com

UTAH

Utah Down Syndrome Foundation
Website: http://www.udsf.org


VIRGINIA

Down Syndrome Association of Hampton Roads
Norfolk, VA
Phone: 757-466-3696
Email: dsahr@verizon.net
Website: www.dsahr.org

Down Syndrome Association of Northern Virginia
Falls Church, VA
Phone: 703-621-7129
Website: www.dsanv.org

WISCONSIN

Down Syndrome Association of Wisconsin, Inc.
Milwaukee, WI
Phone: 414-327-3729
Email: info@dsaw.org
Website: www.dsaw.org

Madison Area Down Syndrome Society
Madison, WI
Phone: 608-692-7653
Email: info@madss.org
Website: www.madss.org

WYOMING

Wyoming Down Syndrome Association
Laramie, WY
Phone: 307-742-6641
Website: www.wydsa.org

Puerto Rico

Mis Amigos De Sindrome de Down, Inc.
Carolina, PR
Phone: 787-791-3249
Email: yolanda@masdpr.net

Madres Innovadoras de Personas con sindrome deDown
Las Piedras, PR
Phone: 787-312-5574
Email: madresinnovadoras@gmail.com
Website: http://madresinnovadoras.blogspot.com

Fundacion Puertoriqueña de Sindrome de Down
San Juan, PR
Phone: 787-287-2800

Canada

ONTARIO

Down Syndrome Association of Toronto
Toronto Ontario, ON
Phone: 416-966-0990
Email: info@dsat.ca
Website: www.dsat.ca
real-life-down-syndrome-families
One of the most important and meaningful things that families do is network with other families... those that have walked ahead of us and those that are just joining us on this journey. If you would like to share your journey with us, please contact us

*birth year noted in parentheses

Abby - Mostly True Stuff (2010)
Adam - The Price is Write
Addison - Our Perfectly Imperfect Life  | Dreaming on an Angel (2006)
Addison - Everything and Nothing From Essex (2010)
Addysen - The Heflin Family (2006)
Adelynn - Adelynn's Journey (2008)
Alina - Living in the Light | Loving Alina (2007)
Aloyna - The Missing Swerd (2006)
Amanda - T21 and Us (2005) 
Amelia - LindsayKids7
Amelia - Fetching Angels (2009) 
Amelia - The Tryon Family (2007)
Angela - Garden of Eagan (1996)
Anna - Life as we Know It (2009)
Annikah - Only 1 Mom | Gathering them from the East (2005)
Asa - Life is What You Make It (2007)
Austin - Down South Musings (2004)
Ava - Urban Goes Country (2004)
Ava - The Uplook (2010)
Avery - Life with my Girls (2007)
Avery - Pinwheels
Bree - Enjoy the Journey (2007)
Brennan - Brennan's Beginnings (2008)
Bridget - Living in the Light (2006)

Cadence - Today's Special
Caleb - Hanzely Clan News (2005)
Calvin - Ailts Family (2010)
Cameron - Believing in Miracles (2006)
Carly - A B and C's Mom (2002 - 2010)
Charlie - Blessings and Glory (2007)
Charlie - Charlie's Up To (2006)
Charlotte - Chasing Charlotte (2008)
Ciarra - Down Blogger (1998)
Claire - Moo's Crossing (2010)
Coco - Coco's Corner (2008)
Colin - Love for Colin (2009)
Colin - Mothering the McKrola Mob (2010)
Cora - Our Cora Bean (2011)

Dante - LindsayKids7
Darah - Our Story Continued (2004)
Dasha - Newbold Family Adoption Journey (2006)
Dasha - Our Version of Normal (2003)
Dylan - Days with Dylan (2008)

Eden - The Poppies' Blog
Eian - My Monkmee Boys (2007)
Elias - My Son, Elias
Elijah - Me and My Boys (2010)
Ella - Ella Grace with the Pretty Face (2006)
Ella - Raising Ella Lynn (2010)
Ella - Sweet Ella Grace (2008)
Ellie - The Chronicles of Ellie Bellie Bear (2009)
Ellie - My Stubborn Little Miss (2011)
Emeline - Moments Worth Remembering (2005)
Emilia - Daily Smiles
Emily - Living Life with E's (2009)
Emma - Lovely and Amazing
Emma Sage - Emma Sage
Emmalee - Don't Lick the Ferrets (2004)
Erin - My Little Saint
Erin - Party of Ten (2007)
Ethan - The Faulkner Family (2001)
Evan - Four Blessings of Mine (2011)
Evangeline - Pocket Lint | Expecting Evangeline (2006)
Evelyn - Life as we Know It (2008)

Finnian - Life as I Know It | Finnian's Journey (2008)

Gabriella - The Bartolone Family (2009)
Gabriella - Andrews Crew
Gabriella - Gabi's World
Goldie - Livin for the Love
Grady - Skiing Through Life (2010)
Grant - The Bastows (2006)
Grifyn - Only 1 Mom | Gathering them from the East (2003)

Hailey - The Hailey Herald (2011)

Isabella - Andrews Crew
Issac - Hanzely Clan New (2005)
Jaden - Welcome to Taylorville (2008)
Jaemen - My Crazy Life
Jaidin - Jaidin's Journey (2011)
Jakey - Missfancypants' World (2001)
Janna - Immovable Faith
Jessa - Fetching Angels (2008)
Jessica - One More Day
Jimmy - Ni Modo Todo
Joaquin - The Sanchez Six (2008)
Joanna - Everything Hayezee (2011)
Joe - Life According to Emma and Joe
Joel - Living in the Moment (2007)
Joey - Raising Joey
Johanna - Fetching Angels (2008)
John - John Bremer
John Michael - Monkey Musings
John Paul - Newbold Family Adoption Journey (2004)
Joseph - Welcome to Taylorville (2007)
Josie - It's a Van Nice Life
Karli - Karli's Kingdom (2005)
Kayla - Big Blueberry Eyes (2003)
Kayla - Opposite Kids
Kennedy - Life as we Know It (2011)
Kira - Zip Perdue Dee Dah
Kirill - Mini Vans and Mom Jeans | Our Eyes Opened (2006)
Kirsten - She is Our Angel (1987 - 2010)
Koby - Fabulous Fields
Lana - Thriving on Love
Landon - My Little "Son-Shine" (2009)
Larkin - Larkin's Place (2005)
Lauren - Snaps of our Life (2007)
LC - The Adventures of Pudge and Zippy (2008)
Leah - Everyday Elliott
Logan - Baeten Family
Lucas - Mundo Bean (2006)
Lucy - Mutterings and Musings (2007)

Macey - Grew by 2 (2004)
Macy - The Ham Fam
Macy - Sharing Our Sunshine (2010)
Malakai - Malakai Stow (2008)
Malea - One More, More Than One
Marcus - Grew by 2 (2006)
Marina -  Ulli's Blog
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real-life-down-syndrome-the-facts
What is Down syndrome?

Down syndrome is the most common genetic condition. One in every 733 babies is born with Down syndrome. The most common form of Down syndrome is called Trisomy 21, because it involves an extra copy of the 21st chromosome.

What causes Down syndrome?

In every cell in the human body there is a nucleus, where genetic material is stored in genes.  Genes carry the codes responsible for all of our inherited traits and are grouped along rod-like structures called chromosomes.  Normally, the nucleus of each cell contains 23 pairs of chromosomes, half of which are inherited from each parent. 

Down syndrome is usually caused by an error in cell division called "nondisjunction."  Nondisjunction results in an embryo with three copies of chromosome 21 instead of the usual two.  Prior to or at conception, a pair of 21st chromosomes in either the sperm or the egg fails to separate.  As the embryo develops, the extra chromosome is replicated in every cell of the body.  This type of Down syndrome, which accounts for 95% of cases, is called Trisomy 21.
  
The two other types of Down syndrome are called mosaicism and translocation.  Mosaicism occurs when nondisjunction of chromosome 21 takes place in one-but not all-of the initial cell divisions after fertilization.  When this occurs, there is a mixture of two types of cells, some containing the usual 46 chromosomes and others containing 47.  Those cells with 47 chromosomes contain an extra chromosome 21.  Mosaicism accounts for about 1% of all cases of Down syndrome.  Research has indicated that individuals with mosaic Down syndrome may have fewer characteristics of Down syndrome than those with other types of Down syndrome.  However, broad generalizations are not possible due to the wide range of abilities people with Down syndrome possess.
Translocation accounts for about 4% of all cases of Down syndrome.  In translocation, part of chromosome 21 breaks off during cell division and attaches to another chromosome, typically chromosome 14.  While the total number of chromosomes in the cells remain 46, the presence of an extra part of chromosome 21 causes the characteristics of Down syndrome. 
  
Regardless of the type of Down syndrome a person may have, all people with Down syndrome have an extra, critical portion of chromosome 21 present in all or some of their cells.  This additional genetic material alters the course of development and causes the characteristics associated with Down syndrome. 
The cause of nondisjunction is currently unknown, but research has shown that it increases in frequency as a woman ages.  However, due to higher birth rates in younger women, 80% of children with Down syndrome are born to women under 35 years of age.  There is no definitive scientific research that indicates that Down syndrome is caused by environmental factors or the parents' activities before or during pregnancy. 
  
Once a woman has given birth to a baby with Trisomy 21, it is estimated that her chances of having another baby with Trisomy 21 is 1% greater than her chances by age alone.

The age of the mother does not seem to be linked to the risk of translocation.  Most cases are sporadic-that is, chance events.  However, in about one third of cases, one parent is a carrier of a translocated chromosome.  The risk of recurrence of translocation is about 3% if the father is the carrier and 10-15% if the mother is the carrier.  Genetic counseling can determine the origin of translocation. 

How is Down syndrome Diagnosed?
 
Prenatally -- There are two types of tests for Down syndrome that can be performed before a baby is born: screening tests and diagnostic tests. Prenatal screens estimate the chance of the fetus having Down syndrome. These tests only provide a probability. Diagnostic tests can provide a definitive diagnosis with almost 100% accuracy.

Most screening tests involve a blood test and an ultrasound (sonogram). The blood tests (or serum screening tests) measure quantities of various substances in the blood of the mother. Together with a woman's age, these are used to estimate her chance of having a child with Down syndrome. These blood tests are often performed in conjunction with a detailed sonogram to check for "markers" (characteristics that some researchers feel may have a significant association with Down syndrome). Recently, researchers have developed a maternal serum/ultrasound/age combination that can yield a much higher accuracy rate at an earlier stage in the pregnancy. Still, the screen will not definitively diagnose Down syndrome.

Prenatal screening tests are now routinely offered to women of all ages. If the chance of having a child with Down syndrome is high from prenatal screening, doctors will often advise a mother to undergo diagnostic testing if they desire a definitive diagnosis.

The diagnostic procedures available for prenatal diagnosis of Down syndrome are chorionic villus sampling (CVS) and amniocentesis. These procedures, which carry up to a 1% risk of causing a spontaneous termination (miscarriage), are practically 100% accurate in diagnosing Down syndrome. Amniocentesis is usually performed in the second trimester after 15 weeks of gestation, CVS in the first trimester between 9 and 11 weeks.

At Birth -- Down syndrome is usually identified at birth by the presence of certain physical traits: low muscle tone, a single deep crease across the palm of the hand, a slightly flattened facial profile and an upward slant to the eyes.  Because these features may be present in babies without Down syndrome, a chromosomal analysis called a karyotype is done to confirm the diagnosis. To obtain a karyotype, doctors draw a blood sample to examine the baby's cells. They use special tools to photograph the chromosomes and then group them by size, number, and shape. By examining the karyotype, doctors can diagnose Down syndrome.  Another genetic test called FISH can apply similar principles and confirm a diagnosis in a shorter amount of time.

What impact does Down syndrome have on society?

Individuals with Down syndrome are becoming increasingly integrated into society and community organizations, such as school, health care systems, work forces, and social and recreational activities. Individuals with Down syndrome possess varying degrees of intellectual disabilities, from very mild to severe. Most people with Down syndrome have IQs in the mild to moderate range of intellectual disability.

Due to advances in medical technology, individuals with Down syndrome are living longer than ever before. In 1910, children with Down syndrome were expected to survive to age nine. With the discovery of antibiotics, the average survival age increased to 19 or 20. Now, with recent advancements in clinical treatment, most particularly corrective heart surgeries, as many as 80% of adults with Down syndrome reach age 60, and many live even longer.

In the United States, approximately 400,000 families have a child with Down syndrome, and about 5,000 babies with Down syndrome are born each year. More and more Americans will interact with individuals with this genetic condition, increasing the need for widespread public education and acceptance.

General Facts 

• Down syndrome occurs when an individual has three, rather than two, copies of the 21st chromosome. This additional genetic material alters the course of development and causes the characteristics associated with Down syndrome.

• Down syndrome is the most commonly occurring chromosomal condition. One in every 733 babies is born with Down syndrome.

• There are more than 400,000 people living with Down syndrome in the United States.

• Down syndrome occurs in people of all races and economic levels.

• The incidence of births of children with Down syndrome increases with the age of the mother. But due to higher fertility rates in younger women, 80% of children with Down syndrome are born to women under 35 years of age.

• People with Down syndrome have an increased risk for certain medical conditions such as congenital heart defects, respiratory and hearing problems, Alzheimer's disease, childhood leukemia, and thyroid conditions. Many of these conditions are now treatable, so most people with Down syndrome lead healthy lives.

• A few of the common physical traits of Down syndrome are low muscle tone, small stature, an upward slant to the eyes, and a single deep crease across the center of the palm. Every person with Down syndrome is a unique individual and may possess these characteristics to different degrees or not at all.

• Life expectancy for people with Down syndrome has increased dramatically in recent decades - from 25 in 1983 to 60 today.

• People with Down syndrome attend school, work, participate in decisions that affect them, and contribute to society in many wonderful ways.

• All people with Down syndrome experience cognitive delays, but the effect is usually mild to moderate and is not indicative of the many strengths and talents that each individual possesses.

• Quality educational programs, a stimulating home environment, good health care, and positive support from family, friends and the community enable people with Down syndrome to develop their full potential and lead fulfilling lives.

• Researchers are making great strides in identifying the genes on Chromosome 21 that cause the characteristics of Down syndrome. Many feel strongly that it will be possible to improve, correct or prevent many of the problems associated with Down syndrome in the future.

Information obtained from the National Down Syndrome Society.