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Non-profit Organizations 

Down syndrome Pregnancy
Website: www.downsyndromepregnancy.com

Upside of Down
Website: www.upsideofdown.org

National Organizations

National Down Syndrome Society
Website: www.ndss.org

National Down Syndrome Congress
Website: www.ndsccenter.org

Regional Organizations

United States of America

ALABAMA

North Alabama Down Syndrome Society
Athens, AL
Phone: 256-771-1547
Email: enskat1405@hotmail.com

Down Syndrome Alabama/Parent Advocates Down Syndrome
Birmingham, AL
Phone: 205-988-0810
Email: downsyndromealabama@gmail.com
Website: www.downsyndromealabama.org

Down Syndrome Society of Mobile County
Mobile, AL
Phone: 251-634-1351
Email: lalapedrn@aol.com
Website: www.dssmc.com

ARIZONA

Sharing Down Syndrome Arizona! Inc
Gilbert, AZ
Phone: 480-926-6500
Email: gina@sharingds.org
Website: www.sharingds.org

Down Syndrome Network AZ
Phoenix, AZ
Phone: 480-759-9150
Email: info@dsnetworkaz.org
Website: www.dsnetworkaz.org

ARKANSAS

Down Syndrome Connection of Northwest Arkansas
Siloam Springs, AR
Phone: 479-549-1084
Email: kathy@dscnwa.org
Website: www.dscnwa.org

CALIFORNIA

Down Syndrome Association of Riverside County West
Corona, CA
Phone: 951-314-3937
Email: lindseyferrell@sbcglobal.net
Website: www.dsarcw.org

Down Syndrome Association of Los Angeles
Glendale, CA
Phone: 818-242-7871
Email: info@dsala.org
Website: www.dsala.org

Down Syndrome Association of Orange County
Costa Mesa, CA
Phone: 714-540-5794
Email: info@dsaoc.org
Website: www.dsaoc.org

Parents Helping Parents Silicon Valley Down Syndrome Network
Santa Clara, CA
Phone: 408-727-5775
Email: info@php.com

The Arc Solano /Solano Parents United for Down Syndrome
Vallejo, CA
Phone: 707-552-2935
Email: arcgforcier@email.com
Website: www.thearcsolano.org

Down Syndrome Association of San Diego
San Diego, CA
Phone: 858-272-1415
Email: lsmith06@san.rr.com
Website: www.dsasdonline.org

Down Syndrome Foundation of Orange County
Irvine, CA
Phone: 949-757-1177
Email: info@dsfoc.org
Website: www.dsfoc.org

Down Syndrome Special Needs Network
Santa Maria, CA
Phone: 805-937-9458
Email: hofflouise@aol.com

Fresno Area Down Syndrome Society
Fresno, CA
Phone: 559-228-0411
Email: execdir@fadss.net
Website: www.fadss.net

Down Syndrome Information Alliance
Sacramento, CA
Phone: 916-658-1686
Email: info@downsyndromeinfo.org
Website: www.downsyndromeinfo.org

Down Syndrome Connection of the Bay Area
Danville, CA
Phone: 925-362-8660
Email: down_syndrome@sbcglobal.net
Website: www.dsconnection.org

Down Syndrome Action
San Diego, CA
Phone: 619-694-4615
Email: raylene.dickinson@dsaction.com
Website: www.dsaction.com

Sonoma County Down Syndrome Support
Santa Rosa, CA
Phone: 707-537-8001

Down Syndrome Association of Hemet
Hemet, CA
adelecox731@msn.com

COLORADO

Mile High Down Syndrome Association Inc.
Denver, CO
Phone: 303-797-1699
Email: info@mhdsa.org
Website: www.mhdsa.org

Colorado Springs Down Syndrome Association
Colorado Springs, CO
Phone: 719-633-1133
Email: info@csdsa.org
Website: www.csdsa.org

CONNECTICUT

Connecticut Down Syndrome Congress
Hartford, CT
Phone: 888-486-8537
Email: manager@ctdownsyndrome.org
Website: www.ctdownsyndrome.org

DELAWARE

Down Syndrome Association of Delaware
Middletown, DE
Phone: 302-995-1004
Website: www.dsadelaware.com

FLORIDA

Down Syndrome Association of Central Florida
Orlando, FL
Phone: 407-540-1121
Email: avanbergen@dsacf.org
Website: www.dsacf.org

Down Syndrome Association of Jacksonville
Jacksonville, FL
Phone: 904-353-6300
Email: dsaj@bellsouth.net
Website: www.dsaj.org

Manasota BUDS
Bradenton, FL
Phone: 941-907-0499
Email: info@manasotabuds.org
Website: www.manasotabuds.org

Gold Coast Down Syndrome Organization
Boca Raton, FL
Phone: 561-912-1231
Email: gcdso@bellsouth.net
Website: www.Goldcoastdownsyndrome.org

FRIENDS Support
Brandon, FL
Phone: 813-654-6693

Fun Coast Down Syndrome Association
Palm Coast, FL
Phone: 386-447-8034
Email: funcoastdown@bellsouth.net
Website: www.funcoastdownsyndrome.com

GEORGIA

Down Syndrome Association of Atlanta
Atlanta, GA
Phone: 404-320-3233
Email: contactus@atlantadsaa.org
Website: www.atlantadsaa.org

HAWAII

Hawaii Down Syndrome Congress
Honolulu, HI
Phone: 808-949-1999
Email: hawaiidownsyndrome@hawaii.rr.com

IDAHO

Treasure Valley Down Syndrome Association
Meridian, ID
Phone: 208-378-9912
Email: president@idahodownsyndrome.org
Website: www.idahodownsyndrome.org

ILLINOIS

Livingston Area Down Syndrome Society
Chatsworth, IL
Phone: 815-589-2202
Email: info@ladss.org
Website: www.ladss.org

Heart of Illinois Down Syndrome Association
Morton, IL
Phone: 309-712-4852
Email: info@hoidsa.org
Website: www.hoidsa.org

Gigi’s Playhouse
Hoffman Estates, IL
Phone: 847-885-7529
Email: gianni4567@aol.com
Website: www.gigisplayhouse.com

NADS
Wilmette, IL
Phone: 630-325-9112
Email: info@nads.org
Website: www.nads.org

Down Syndrome Network
Champaign, IL
Phone: 217-351-4163
Email: info@champaigndsn.org
Website: www.champaigndsn.org

Central IL Down Syndrome Organization
Normal, IL
Phone: 309-452-3264
Website: www.cidso.org

INDIANA

Down Syndrome Association of Central Indiana
Carmel, IN
Phone: 317-574-9757
Email: MKaye62801@aol.com

Dads Appreciating Down Syndrome
Indianapolis, IN
Phone: 317-523-5888
Website: www.dadsappreciatingdownsyndrome.net

Down Syndrome Support Asso. of South Indiana
Clarksville, IN
Phone: 812-948-5182
Email: dssasi@dssasi.com
Website: www.dssasi.org

Down Syndrome Indiana
Indianapolis, IN
Phone: 317-925-7617
Email: info@dsindiana.org
Website: www.dsindiana.org

Elkhart Co. Down Syndrome Support Group
Goshen, IN
Phone: 574-534-3931
Email: ecdssg@mac.com
Website: www.ecdssg.org

SMILE on Down Syndrome
Newburgh, IN
Phone: 812-925-6839
Email: nina@smileondownsyndrome.org
Website: www.smileondownsyndrome.org

Down Syndrome Family Connection
Bloomington, IN
Phone: 812-720-9603
Email: info@downsyndromefamilyconnection.org
Website: www.downsyndromefamilyconnection.org

Down Syndrome Family Support and Advocacy Group (Northern Indiana)
Granger, IN
Phone: 574-234-0590
Email: info@www.michianadownsyndrome.org
Website: www.michianadownsyndrome.org

IOWA

Hawkeye Area Down Syndrome Association
Ainsworth, IA
Email: mccarthy@hadsa.org
Website: www.hadsa.org

Northwest Iowa Down Syndrome Society
Spencer, IA
Phone: 712-580-6671

KANSAS

Down Syndrome Guild of Greater Kansas City
Shawnee Mission, KS
Phone: 913-384-4848
Email: info@kcdsg.org
Website: www.kcdsg.org

KENTUCKY

Green River Area Down Syndrome Association
Owensboro, KY
Phone: 270-771-4945
Email: info@gradsa.org
Website: www.gradsa.org

Down Syndrome of Louisville, Inc.
Louisville, KY
Phone: 502-495-5088
Email: dianam@downsyndromeoflouisville.org
Website: www.downsyndromeoflouisville.org

LOUISIANA

Up with Down’s
Shreveport, LA
Phone: 318-797-8575
Email: upwithdowns@hotmail.com
Website: www.upwithdowns.com

Down Syndrome Association of Acadiana
Lafayette, LA
Phone: 337-234-3109
Email: dsaa@dsaa.info
Website: www.dsaa.info

Down Syndrome Awareness Group
Baton Rouge, LA
Phone: 225-664-0375
Email: phroberts@cox.net

Down Syndrome Association of Greater New Orleans
Destrehan, LA
Phone: 504-251-8953
Email: kscallan@dsagno.org
Website: www.dsagno.org

MARYLAND

Anne Arundel County Down Syndrome Connection
Arnold, MD
Phone: 410-757-8339
Email: flornce397@comcast.net

Chesapeake Down Syndrome Parent Group, Inc.
Baltimore, MD
Phone: 410-321-5434
Email: info@cdspg.org
Website: www.cdspg.org

F.R.I.E.N.D.S
Middletown, MD
Phone: 301-371-7047
Email: friendsoffredco@gmail.com

MASSACHUSETTS

Massachusetts Down Syndrome Congress
Melrose, MA
Phone: 800-664-6372
Email: mdsc@mdsc.org
Website: www.mdsc.org

Berkshire County ARC Down Syndrome Family Group
Pittsfield, MA
Phone: 413-499-4241 265
Email: mtiffany@bcarc.org

Down Syndrome Resource Group of Western MA
Springfield, MA
Phone: 800-536-2910, 413-794-8342
Email: info@dssupport.org
Website: www.dssupport.org

MICHIGAN

Down Syndrome Association of West Michigan
Grand Rapids, MI
Phone: 616-956-3488
Email: dsawm@iserv.net
Website: www.dsawm.org

Families Exploring Down Syndrome
Sterling Heights, MI
Phone: 586-997-7607
Email: fedsyndrome@aol.com
Website: www.familiesexploringdownsyndrome.org

Down Syndrome Guild of Southeast Michigan
Royal Oak, MI
Phone: 248-827-9135
Email: info@dsgsemi.org
Website: www.dsgsemi.org

St. Clair County Down Syndrome Support Group
St. Clair, MI
Phone: 810-367-2045
Email: kellydinardo@comcast.net

MINNESOTA

Down Syndrome Association of Minnesota
St. Paul, MN
Phone: 651-603-0720
Email: kathleen@dsamn.org
Website: www.dsamn.org

MISSOURI

Down Syndrome Group of the Ozarks
Springfield, MO
Phone: 417-885-9905
Email: DLneidigh@att.net
Website: www.ozarksdsg.org

Down Syndrome Association of Greater St. Louis, Inc.
St. Louis, MO
Phone: 314-961-2504
Email: linda@dsagsl.org
Website: www.dsagsl.org

NEBRASKA

Down Syndrome Association for Families
Lincoln, NE
Phone: 402-421-1399
Email: deb@dsafnebraska.org
Website: www.dsafnebraska.org

Omaha Down Syndrome Parents Network
Omaha, NE
Phone: 402-991-1800
Email: info@opdsn.org
Website: www.odspn.org

NEVADA

Down Syndrome Organization of S. Nevada
Las Vegas, NV
Phone: 702-648-1990
Email: ceo@dsosn.org
Website: www.dsosn.org

Down Syndrome Network of Northern Nevada
Reno, NV
Phone: 775-544-8811
Email: colettemckenzie@sbcglobal.net

NEW HAMPSHIRE

Northern New England Down Syndrome Congress
Concord, NH
Phone: 603-622-6904
Email: maria@nnedsc.org
Website: www.nnedsc.org

NEW JERSEY

Down Syndrome Association of Central New Jersey
Ewing, NJ
Phone: 866-369-6796
Email: dsacnj@arcmercer.org
Website: www.dsacnj.org

Network 21
E. Brunswick, NJ
Phone: 732-634-3299
Email: geoffroyamy@gmail.com
Website: www.dsnetwork21.org

BUDS “Bringing Up Down Syndrome”
Cherry Hill, NJ
Phone: 856-354-0584
Email: threehens@aol.com

21 Down/ Down Syndrome Awareness Group
Northfield, NJ
Phone: 609-625-8141
Email: info@21down.org
Website: www.21down.org

KIIDS
Bellmawr, NJ
Phone: 856-435-2327
Email: julie@kiids.info
Website: www.kiids.info

NEW MEXICO

Rio Grande Down Syndrome Network
Rio Rancho, NM
Phone: 505-892-2551
Email: riograndedsn@aol.com

Southeastern New Mexico Down Syndrome Foundation
Roswell, NM
Phone: 575-622-1099
Email: tmccreary@plateautel.net

NEW YORK

Down Syndrome Information Network
Johnson City, NY
Phone: 607-729-3696
Email: jdimitriou@stny.rr.com

Down Syndrome Association of Central New York
Manlius, NY
Phone: 315-682-4289
Email: dsaofcny@aol.com

Down Syndrome Info Network of the Twin Tiers
Horseheads, NY
Phone: 607-734-6151
Email: carc@stny.rr.com

Down Syndrome Connection of Long Island
Huntington, NY
Phone: 631-427-4395
Email: info@dscli.org
Website: www.dscli.org

Flower City Down Syndrome Network
Webster, NY
Phone: 585-234-2345
Email: saccapez@rochester.rr.com
Website: www.fcdsn.com

Down Syndrome Parent Support Group of Genesee Cty
Oakfield, NY
Email: kay@downsyndromegenesee.org
Website: www.downsyndromegenesee.org

Trisomy 21 Foundation of Northern NY
Watertown, NY
Phone: 315-788-0869

Down Syndrome Association of the Hudson Valley
Hopewell Junction, NY
Phone: 845-226-5220
Email: fmarotta@frontiernet.net
Website: www.dsahv.org

Down Syndrome Aim High Resource Center, Inc.
Albany, NY
Phone: 518-438-1113
Email: dlang@dsahrc.org
Website: www.dsahrc.org

Down Syndrome Parent Group of Western New York
Kenmore, NY
Phone: 716-832-9334
Email: dspgwny@hotmail.com
Website: www.dspgwny.org

NORTH CAROLINA

Down Syndrome Association of Charlotte
Charlotte, NC
Phone: 704-536-2163
Email: president@dsacnc.org
Website: www.dsacnc.org

Triangle Down Syndrome Network
Raleigh, NC
Phone: 919-788-3646
Email: tdsnmail@triangledownsyndrome.org
Website: www.triangledownsyndrome.org

Piedmont Down Syndrome Support Network
Winston-Salem, NC
Email: pdssnemail@gmail.com
Website: www.pdssn.com

Down Syndrome Network of Greater Greensboro
Greensboro, NC
Phone: 336-832-6507
Email: nickelhodges@yahoo.com
Website: www.team-up.org

OHIO

Miami Valley Down Syndrome Association
Dayton, OH
Phone: 937-222-0744
Email: office@mvdsa.org
Website: www.mvdsa.org

Down Syndrome Association of Central Ohio
Columbus, OH
Phone: 614-475-6440
Email: dsaco@dsaco.net
Website: www.dsaco.net

The Down Syndrome Association of the Valley
Boardman, OH
Phone: 330-726-3728
Email: info@dsav.org
Website: www.dsav.org

Down Syndrome Association of Greater Cincinnati
Cincinnati, OH
Phone: 513-761-5400
Email: janet@dsagc.com
Website: www.dsagc.com

Upside of Downs/Greater Cleveland
Mentor, OH
Phone: 216-228-6246
Email: usodowns@aol.com
Website: www.theupsideofdowns.org

Down Syndrome Association of Greater Toledo
Sylvania, OH
Phone: 419-536-4321
Email: information@dsagt.org
Website: www.dsagt.org

OKLAHOMA

Down Syndrome Association of Central Oklahoma
Oklahoma City, OK
Phone: 405-330-5025
Email: mooreorless616@sbcglobal.net
Website: www.dsaco.org

Down Syndrome Association of Tulsa, Inc.
Tulsa, OK
Phone: 918-622-6906
Email: erin-adam@prodigy.net
Website: www.dsat.org

PENNSYLVANIA

Down Syndrome Association of Pittsburgh
Gibsonia, PA
Website: www.dsapgh.org
 
Delaware County Down Syndrome Interest Group
Springfield, PA
Phone: 610-544-4025
Email: DELCODSIG@yahoo.com

Montgomery County Down Syndrome Interest Group of PA
Sassamansville, PA
Phone: 610-754-1483
Email: rosehtownsend@yahoo.com
Website: www.mcdsig.org

Down Syndrome Group of Erie County
Erie, PA
Phone: 814-833-2143
Email: lupo12345@aol.com

Chester Co. Down Syndrome Interest Group
Exton, PA
Phone: 610-889-0291
Email: info@ccdsig.org
Website: www.ccdsig.org

RHODE ISLAND

Down Syndrome Society of Rhode Island
Cranston, RI
Phone: 401-463-5751
Email: coordinator@dssri.org
Website: www.dssri.org

SOUTH CAROLINA

Coastal Down Syndrome Group
North Myrtle Beach, SC
Phone: 843-280-5976
Email: gwilli5341@aol.com

The Grand Strand Down Syndrome Society
Pawleys Island, SC
Phone: 843-283-0890
Email: grandstranddss@hotmail.com
Website: www.gsdss.net
 
Family Connections
Columbia, SC
Phone: 822-578-8750
Email: info@familyconnectionsc.org

Down Syndrome Association of Lowcountry
Daniel Island, SC
Phone: 843-553-3725
Email: chad@danielislandmedia.net
Website: www.dsalowcountry.org

SOUTH DAKOTA

New Directions
Sioux Falls, SD
Phone: 605-582-7717
Email: matthieshome@alliancecom.net

TENNESSEE

Down Syndrome Awareness Group of East Tennessee
Knoxville, TN
Phone: 423-905-2968
Email: dsagtn@hotmail.com
Website: www.dsagtn.org

The Down Syndrome Association of the Mid-South
Memphis, TN
Phone: 901-547-7588
Email: director@dsamemphis.org
Website: www.dsamemphis.org

Chattanooga Down Syndrome Society
Signal Mountain, TN
Phone: 432-867-1629
Email: amyp98@comcast.net
Website: www.chattanoogadownsyndrome.org

Down Syndrome Association of Middle Tennessee
Nashville, TN
Phone: 615-386-9002
Email: dsamt@bellsouth.net
Website: www.dsamt.org

TEXAS

BUDS – Better Understanding of Down Syndrome
Lubbock, TX
Email: llowe@budsonline.net

Red River Valley Down Syndrome Society
Paris, TX
Phone: 903-783-1922
Email: info@rrvdss.org
Website: www.redriverdss.org

Down Syndrome Support Group of Bryan/College Station
Bryan, TX
Phone: 979-778-7010
Email: downsyndromeofbcs@yahoo.com
Website: www.downsyndromeofbcs.com

Down Syndrome Partnership of Tarrant Co.
Arlington, TX
Phone: 817-277-7064
Email: info@dsptc.org
Website: www.dsptc.org

East Texas Down Syndrome Group
Longview, TX
Phone: 903-757-3516
Email: clmack6@cablelynx.com
Website: www.etdsg.org

Down Syndrome Association of Central Texas
Austin, TX
Phone: 512-323-0808
Email: ltullos@dsact.com
Website: www.dsact.com

Down Syndrome Association of San Antonio
San Antonio, TX
Phone: 210-349-4372
Email: tblades@dsasa.org
Website: www.dsasa.org

Down Syndrome Guild of Dallas
Richardson, TX
Phone: 214-267-1374
Email: dsged@sbcglobal.net
Website: www.downsyndromedallas.org

Down By the Border
Brownsville, TX
Phone: 956-544-7727
Email: sergio@downbytheborder.com

UTAH

Utah Down Syndrome Foundation
Website: http://www.udsf.org


VIRGINIA

Down Syndrome Association of Hampton Roads
Norfolk, VA
Phone: 757-466-3696
Email: dsahr@verizon.net
Website: www.dsahr.org

Down Syndrome Association of Northern Virginia
Falls Church, VA
Phone: 703-621-7129
Website: www.dsanv.org

WISCONSIN

Down Syndrome Association of Wisconsin, Inc.
Milwaukee, WI
Phone: 414-327-3729
Email: info@dsaw.org
Website: www.dsaw.org

Madison Area Down Syndrome Society
Madison, WI
Phone: 608-692-7653
Email: info@madss.org
Website: www.madss.org

WYOMING

Wyoming Down Syndrome Association
Laramie, WY
Phone: 307-742-6641
Website: www.wydsa.org

Puerto Rico

Mis Amigos De Sindrome de Down, Inc.
Carolina, PR
Phone: 787-791-3249
Email: yolanda@masdpr.net

Madres Innovadoras de Personas con sindrome deDown
Las Piedras, PR
Phone: 787-312-5574
Email: madresinnovadoras@gmail.com
Website: http://madresinnovadoras.blogspot.com

Fundacion Puertorique├▒a de Sindrome de Down
San Juan, PR
Phone: 787-287-2800

Canada

ONTARIO

Down Syndrome Association of Toronto
Toronto Ontario, ON
Phone: 416-966-0990
Email: info@dsat.ca
Website: www.dsat.ca